Bringing the world together for a cure | WYPR

Bringing the world together for a cure

Dec 6, 2018

Ellie and Dr. Fatemi
Credit Kennedy Krieger

At this holiday season, we are inspired by two families who have joined together, from different corners of the globe, to combat the rare disease afflicting their children. Leslie Marsiglia from Kennedy Krieger’s philanthropy group shares how the McGinns from the D.C. area, and the Fergusons from New Zealand, have partnered to raise money to help Kennedy Krieger Institute find a cure for LBSL, the potentially fatal genetic disorder that both Ellie and Marco are battling.